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Aitken ME, Tilford JM, Barrett KW, Parker JG, Simpson P, Landgraf J, Robbins JM. Health status of children after admission for injury. Pediatrics 2002;110(2 Pt 1):337-342.
Alonso EM, Neighbors K, Barton FB, McDiarmid SV, Dunn SP, Mazariegos GV Landgraf JM, Bucuvalas JC, and the Studies of Pediatric Liver Transplant Research Group. Health Related Quality of Life and Family Function Following Pediatric Liver Transplantation. Liver Transplantation, 2008; 14(4):460-8. Published Online: Mar 26 2008 DOI: 10.1002/lt.21352.
Alonso EM, Neighbors K, Mattson C, Sweet E, Ruch-Ross H, Berry C, Sinacore J. Functional outcomes of pediatric liver transplantation. J Pediatr Gastroenterol Nutr, 2003; 37(2):155-60.
Aran A, Shalev RS, Biran G, Gross-Tsur V. Parenting style impacts on quality of life in children with cerebral palsy. J Pediatr, 2007;151(1): 56-60, 60.e1
Arrington-Sanders R, Yi MS, Tsevat J, Wilmott RW, Mrus JM, Britto MT. Gender differences in health-related quality of life of adolescents with cystic fibrosis. Health Qual Life Outcomes, 2006;4:5
Asmussen L, Olson LM, Grant EN, Landgraf JM, Fagan J, Weiss KB. Use of the Child Health Questionnaire in a sample of moderate and low-income inner-city children with asthma. American Journal of Respiratory and Critical Care Medicine 2000;162(4 Part 1):1215-1221.
Ausili E, Tabacco F, Focarelli B, Padua L, Crea F, Caliandro P, Pazzaglia C, Marietti G, Rendeli C. Multidimensional study on quality of life in children with type 1 diabetes. Eur Rev Med Pharmacol Sci, 2207;11(4):249-55.
Badia Llach X, Benavides Ruiz A, Rajmil Rajmil L. Instruments for measuring health-related quality of life in children and adolescents with asthma. An Esp Pediatr, 2001;54(3):213-21.
Bae SC, Ruperto N, Lee JH, Uhm WS, Park YM, Kim SY, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Korean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S96--S100.
Baker AL, Gauvreau K, Newburger J, Jenkins K. Late impact of Kawasaki Disease on physical and psychosocial health in children. Abstract presentation at the 6th International Kawasaki Disease Symposium, Waikoloa, Hawaii. February 1999.
Baker AL, Gauvreau K, Newburger J, Jenkins K. Physical and psychosocial health in patients who have had Kawasaki Disease. Abstract presentation at the World Congress of Pediatric Cardiology, Toronto, Canada. May 2001.
Baker AL, Gauvreau K, Newburger JW, Sundel RP, Fulton DR, Jenkins KJ. Physical and psychosocial health in children who have had Kawasaki disease. Pediatrics 2003;111(3):579-83.
Baldassari CM, Mitchell RB, Schubert C, Rudnick EF. Pediatric obstructive sleep apnea and quality of life: a meta-analysis. Otolaryngol Head Neck Surg, 2008;138(3):265-273.
Bandeira M, Falcone A, Pistrio A, Ruoerto N, Magni-Manzoni S, Buoncompagni A, Sala E, Loy A, Martini A, Ravelli A. Weighting improves the information provided by joint counts on the severity of arthritis and its impact on patients' well-being in juvenile idiopathic arthritis. Rheumatology (Oxford)2006;45(3):343-7.
Banks BA, Borrowman NJ, Klaassen R. Health-related quality of life: changes in children undergoing chemotherapy. J Pediatr Hematol Oncol,2008;30(4): 292-7.
Bannik EM, van Pareren YK, Theunissen NC, Raat H, Mulder PG, Hokken-Koelega AC. Quality of life in adolescents born small for gestational age: does growth hormone make a difference? Horm Res,2005:64(4):166-74.
Bannink EMN, Raat H, Mulder PGH, Muinck Keizer-Schrama SMPF. Quality of life after growth hormone therapy and induced puberty in women with Turner Syndrome. J Pediatr 2006;148(1):95-101.
Barrera M, Gee C, Andrews GS, Armstrong CA, Saunders FE. Health-related quality of life of children and adolescents prior to hematopoietic progenitor cell transplantation: diagnosis and age effects. Pediatr Blood Cancer, 2006;47(3): 320-6.
Bhatia S, Jenney ME, Wu E, Bogue MK, Rockwood TH, Feusner JH, Friedman DL, Robison LL, Kane RL. The Minneapolis-Manchester Quality of Life instrument: Reliability and validity of the Youth Form. J Pediatr, 2004; 145(1): 39-46.
Bhatia S., Jenney M.E., Bogue M.K., Rockwood T.H., Feusner J.H., Friedman D.L., Robison L.L., & Kane R.L. The Minneapolis-Manchester Quality of Life instrument: reliability and validity of the Adolescent Form. Journal of Clinical Oncology 2002;20(24:4692-4698.
Bjornson KF, Belza B, Kartin D, Logsdon RG, McLaughlin J. Self-reported health status and quality of life in youth with cerebral palsy and typically developing youth. Arch Phys Med Rehabil,2008;89(1): 121-7.
Bond C, Youngson G, MacPherson I, Garrett A, Bain N, Donald S, Macfarlane TV. Anal plugs for the management of fecal incontinence in children and adults: a randomized control trial. J Clin Gastroenterol,2007;41(1):45-53.
Brasil TB, Ferriani VP, Machado CS. Health related quality of life survey about children and adolescents with juvenile idiopathic arthritis. Pediatr (Rio J),2003;79(1):63-8.
Britto MT, Kotagal UR, Chenier T, Tsevat J, Atherton HD, Wilmott RW. Differences between adolescents' and parents' reports of health-related quality of life in cystic fibrosis. Pediatr Pulmonol, 2004;37(2):165-71.
Britto MT, Kotagal UR, Hornung RW, Atherton HD, Tsevat J, Wilmott RW. Impact of recent exacerbations on quality of life in patients with cystic fibrosis. Chest, 2002;121(1):64-72.
Brown RT, Perwien A, Faries DE, Kratochvil CJ, Vaughan BS. Atomoxetine in the management of children with ADHD: effects on quality of life and school functioning. Clinical Pediatrics 2006; 45 819-827.
Buckstein DA, McGrath M, Buchner DA, Landgraf J, Goss TF. Evaluation of a short form for measuring health-related quality of life among pediatric asthma patients. Pediatrics 2000;106(6):1422-8.
Buitelaar JK, Danckaerts M, Gillberg C, Zuddas A, Becker K, Bouvard M, Fagan J, Gadoros J, Harpin V, Hazell P, Johnson M, Lerman-Sagle T, Soutullo CA, Wolanczyk T, Zeiner P, Fouche DS, Krikke-Workel J, Zhang S, Michelson D. A prospective, multicenter, open label assessment of atomoxetine in non-North American children and adolescents with ADHD. Eur Child Adolesc Psychiatry, 2004; 13(4):249-57.
Buysee CMP, Raat H, Hazelzet JA, Vermunt LC, Utens EM, Hop WC, Joosten KF. Long-term health-related quality of life in survivors of meningococcal septic shock in childhood and their parents. Qual Life Res 2007;16(10): 1567-76.
Buysse CM, Raat H, Hazelzet JA, Hop WC, Maliepaard M, Joosten KF. Surviving meningoccal septic shock: health consequences and quality of life in children and their parents. Crit Care Med 2008; 36(2):596-602.
Byrne MW and Honig. Psychometrics of child health questionnaire parent short form (CHQ-28) used to measure quality of life in HIV-infected children on complex anti-retroviral therapy. Quality of Life Research 2005;14(7):1769-1774.
Byrne MW, Honig J. Health-related quality of life of HIV-infected children on complex antiretroviral therapy at home. J Assoc Nurses AIDS Care,2006;17(2):27-35.
Cameron FJ, Clarke C, Hesketh K, White EL, Boyce DF, Dalton VL, Cross J, Brown M, Thies NH, Pallas G, Goss PW, & Werther GA. Regional and urban Victorian diabetic youth: clinical and quality-of-life outcomes. Journal of Paediatrics and Child Health 2002;38(6):593-596.
Canty-Mitchell J, Austin JK, Perkins SM, Qi RA, and Swigonski N. Health-related quality of life in publicly insured children with special health care needs. Children's Health Care, 2005;34(1):1-18.
Carbone JA, Sawyer MG, Searle AK, Robinson PJ. The health-related quality of life of children and adolescents in home-based foster care. Quality of Life Research 2007;16(7):1157-1166.
Céspedes-Cruz A, Gutiérrez-Suárez R, Pistorio A, Ravelli A, Loy A, Murray KJ, Gerloni V, Wulffraat N, Oliveira S, Walsh J, Penades IC, Alpigiani MG, Lahdenne P, Saad-Magalhães C, Cortis E, Lepore L, Kimura Y, Wouters C, Martini A, Ruperto N; Pediatric Rheumatology International Trials Organization (PRINTO). Methotrexate improves the health-related quality of life of children with juvenile idiopathic arthritis. Ann Rheum Dis. 2008 Mar;67(3):309-14.
Cheng JY, Chen RY, Ko JS, Ng EM. Efficacy and safety of atomoxetine for attention-deficit/hyperactivity disorder in children and adolescents-meta-analysis and meta-regression analysis. Psychopharmacology (Berl), 2007;194(2): 197-209.
Choe J., Soo J.I., Vitale M.G., Spellman M.E., & Roye D.P.Perspectives on pediatric outcomes: a comparison of parents' and patients' rating of quality of life following orthopaedic intervention. Quality of Life Research 2001;10(3):218 (abstract #103).
Cole CR, Bucuvalas JC, Hornung RW, Krug S, Ryckman FC, Atherton H, Alonso MP, Balistreri WF, Kotagal U. Impact of liver transplantation on HRQOL in children less than 5 years old. Pediatr Transplant. 2004 Jun;8(3):222-7.
Collins MT, Kushner H, Reynolds JC, Chebli C, Kelly MH, Guota A, Briliante B, Leet AI, Riminucci M, Robey PG, Bianco P, Weintroub S, Chen CC. An instrument to measure skeletal burden and predict functional outcome in fibrous dysplasia of bone. J Bone Miner Res, 2005;20(2): 219-26.
Culbert EL, Ashburn DA, Cullen-Dean G, Joseph JA, Williams WG. Blackstone EH, McCrindle BW and the Congenital Heart Surgeons Society. Quality of life in children after repair of transposition of the great arteries. Circulation 2003; 108(7):857-62.
Cunningham JM, Chiu EJ, Landgraf JM, & Glicklich RE. The health impact of chronic recurrent rhinosinusitis in children. Archives of Otolaryngology-Head & Neck Surgery 2000;126(11):1363-8.
Daltroy L.H., Liang M.H., Fossel A.H., Goldberg M.J., & The Pediatric Outcomes Instrument Development Group. The POSNA Pediatric Musculoskeletal Functional Health Questionnaire: report on reliability, validity, and sensitivity to change. Journal of Pediatric Orthopedics 1998;18:561-571.
Davey TM, Aitken LM, Kassulke D, Bellamy N, Ambrose J, Gee T, Clark M. Long-term outcomes of seriously injured children: a study using the Child Health Questionnaire. J Paediatr Child Health, 2005;41(5-6): 278-83.
de beer M, Hofsteenge GH, Koot HM, Hirasing RA, Delemarre-van de Waal HA, Gemke RJ. Health-related-quality-of-life in obese adolescents is decreased and inversely related to BMI. Acta Paediatr;2007:96(5):710-4.
De Inocencio J, García-Consuegra J, Merino R, Calvo I, García JJ, Ruperto N, for the Paediatric Rheumatology International Trials Organization (PRINTO). The European Spanish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S141-S145.
de Wit M, de Waal HA, Alle Bokma J, Hassnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Monitoring and discussing health related quality of life in adolescents with type 1 diabetes improves psychosocial well-being. A randomized controlled trial. Diabetes Care. 2008 May 28.epub PMID: 18509204
de Wit M, Delemarre-van de Waal HA, Bokma JA, Haasnoot K, Houdijk MC, Gemke RJ, Snoek FJ. Self-report and parent-report of physical and psychosocial well-being in Dutch adolescents with type 1 diabetes in relation to glycemic control. Health Qual Life Outcomes, 2007;5():10.
de Wit M, Delemarre-van de Waal HA, Pouwer F, Gemke RJ, Snoek FL. Monitoring health related quality of life in adolesecnts with diabetes: a review of measures. Arch Dis Child 2007:92(5):434-9.
de Wit M, Pouwer F, Gemke RJ, Delemarre-van de Waal HA, Snoek FJ. Validation of the WHO-5 Well-Being Index in adolescents with type 1 diabetes. Diabetes Care 2007;30(8):2003-6.
DeMaso DR, Lauretti A, Spieth L, van der Feen JR, Jay KS, Gauvreau K, Walsh EP, Berul CI. Psychosocial factors and quality of life in children and adolescents with implantable cardioverter-defibrillators. Am J Cardiol, 2004; 93(5):582-7.
DeVeaugh-Geiss J., Conners C.K., Sarkis E.H., Winner P.K., Ginsberg L.D., Hemphill J.M., Laurenza A., Barrows C.E., Webster C.J., Stotka C.J., & Asgharnejad M. GW320659 for the treatment of Attention-Deficit/Hyperactivity Disorder in Children. Journal of the American Acadamy of Child and Adolescent Psychiatry 2002; 41(8):914-920.
Doležalová P, Ruperto N, Nemcová D, Blichová M, Hoza J, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Czech version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S45-S49.
Drotar D, Schwartz L, Palermo TM, Burant C. Factor structure of the child health questionnaire-parent form in pediatric populations. J Pediatr Psychol,2006:31(2):127-38.
Duarte C, Ruperto N, Goycochea MV, Maldonado R, Beristein R, De Inocencio J, Burgos-Vargas R, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Mexican version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S106-S110.
Duffy CM. Measurement of health status, functional status, and quality of life in children with juvenile idiopathic arthritis: clinical science for he pediatrician. Rheum Dis Clin North Am 2007;33(3):389-402.
Dunbar-Masterson C., Wypij D., Bellinger D.C., Rappaport L.A., Baker A.L., Jonas R.A., & Newburger J.W. General health status of children with D-Transposition of the great arteries after the arterial switch operation. Circulation 2001;104(suppl 1):138-142.
DunnGalvin A, de BlokFlokstra BM, Burks AW, Dubois AE, Hourihane JO. Food allergy QOL questionare for children aged 0-12 years: content, construct, and cross-cultural validity. Clin Exp Allergy 2008;38(6):977-86. Epub. PMID:18435800.
Easton JA, Landgraf JM, Casamassimo PS, Wilson S, Ganzberg S. Evaluation of a generic quality of life instrument for early childhood caries-related pain. Community Dent Oral Epidemiol,2008(): 0.
Edmunds S, Garratt A, Haines L, Blair M. Child Health Assessment at School Entry (CHASE) project: evaluation in 10 London primary schools. Child Care Health Dev, 2005;31(2):143-54.
Edwards L, Watson M, St. James-Roberts I, Ashley S, Tinley C, Brougham B, Osborn T, Baldus C, Romer G. Adolescent's stress responses and psychological functioning when a parent has early breast cancer. Psychooncology 2008.
Eiser C. & Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technology Assessment 2001;5(4).
Ekert H., Brewin T., Boey W., Davey P., & Tilden D. Cost-utility analysis of recombinant factor VIIa (NovoSeven) in six children with long-standing inhibitors to factor VIII or IX. Haemophilia 2001;7(3):279-285.
Epker JV, Maddrey AM. Quality of life in pediatric patients with cystic fibrosis. International Journal of Rehabilitation and Health 1998;4(4):215-222.
Escobar R, Hervas A, Soutullo C, Mardomingo M, Uruauela A, Gilaberte 1. Attention deficit/hyperactivity disorder: burden of the disease according to subtypes in recently diagnosed children. Actas Esp Psiquiatr, (): 0 2008 Epub. PMID:18307061.
Escobar R, Soutullo C, San Sebastian J, Fernandez E, Julian I, Lahortiga F. Atomoxetine safety and efficacy in children with attention deficit/hyperactivity disorder (ADHD): initial phase of 10-week treatment in a relapse prevention study with a Spanish sample. Actas Esp Psiquiatr 2005;33(1):26-32.
Escobar R, Soutullo CA, Hervas A, Gastaminza X, Polavieja P, Gilaberte I. Worse quality of life for children with newly diagnosed attention-deficit/hyperactivity disorder, compared with asthmatic and healthy children. Pediatrics 2005;116(3): e364-9.
Fadrowski J, Cole SR, Hwang W, Fiorenza J, Weiss RA, Gerson A, Furth SL. Changes in physical and psychosocial functioning among adolescents with chronic kidney disease. Pediatr Nephrol, 2006;21(3):394-9.
Faleiros FT, Machado NC. Assessment of health-related quality of life in children with functional defecation disorders. J Pediatr (Rio J), 2006;82(6):421-5.
Fasth A, Nystrom J. Quality of Life and Health-Care Resource Utilization Among Children with Primary Immunodeficiency Receiving Home Treatment with Subcutaneous Human Immunoglobulin. J Clin Immunol. 2008 Feb 7. [Epub ahead of print] PMID: 18256911
Fasth A, Nystrom J. Safety and efficacy of subcutaneous human immunoglobulin in children with primary immunodeficiency. Acta Paediatr. 2007 Oct;96(10):1474-8.
Finkel JC, Finley A, Greco A, Weisman SJ, Zeltzer L. Transdermal fentanyl in the management of children with chronic severe pain: results from an international study. Cancer, 2005;104(12): 2847-57.
Flanary VA. Long-term effect of adenotonsillectomy on quality of life in pediatric patients. Laryngoscope 2003;113(10):1639-44.
Flokstra-de Blok BM, DunnGalvin A, Vlieg-Boerstra BJ, Oude Elberink JN, Duiverman EJ, Hourihane JO, Dubois AE. Development and validation of the self-administered Food Allergy Quality of Life Questionnaire for adolescents. J Allergy Clin Immunol,2008;122(1):139-44, 144.e1-2.
Foeldvari I, Ruperto N, Dressler F, Häfner R, Küster RM, Michels H, Minden K, Schauer-Peterowskaja C, Bullinger M, Landgraf JM, Huppertz HI, for the Paediatric Rheumatology International Trials Organization (PRINTO). The German version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S71-S75.
Friedlander SL, Larkin EK, Rosen CL, Palermo TM, Redline S. Decreased Quality of Life Associated With Obesity in School-aged Children. Archives of Pediatric Adolescent Medicine 2003;157:1206-1211.
Fung EB, Samosn-Fang L, Stallings VA, Conoway M, Liptak G, Henderson RC et. al. Feeding dysfunction is associated with poor growth and health status in children with cerebral palsy. J A Diabetic Assoc. 2002;102(3):361-373.
Gardulf A, Borte M, Ochs HD, Nicolay U. Prognostic factors for health-related quality of life in adults and children with primary antibody deficiencies receiving SCIG home therapy. Clin Immunol, 2008;126(1): 81-8.
Gardulf A, Nicolay U, Asensio O, Bernatowska E, Bock A, Costa-Carvalho B, Granert C, Haag S, Hernandez D, Kiessling P, Kus J, Matamoros N, Niehues T, Schmidt S, Schulze I, Borte M. Children and adults with primary antibody deficiencies gain quality of life by subcutaneous IgG self-infusions at home. J Allergy Clin Immunol 2004;114:936-42.
Geltman PL, Grant Knight W, Mehta SD, Lloyd-Travaglini C, Lustig S, Landgraf JM, and Wise PH. The “Lost Boys” of Sudan: Functional and Behavioral Health of Unaccompanied Refugee Minors Resettled in the United States” Arch. of Pediatr. Adolesc. Med 2005;159(6):585-91.
Geltman PL, Grant-Knight W, Ellis H, Landgraf JM. The "Lost Boys" of Sudan: Use of health services and functional health outcomes of unaccompanied refugee minors resettled in the U.S. J Immigrant Health. 2008;10: In press. DOI 10.1007/s10903-007-9110-6
Georgalas C, Tolley N, Kanagalingam, J. Measuring quality of life in children with adenotonsillar disease with the Child Health Questionnaire: A First U.K. study. Laryngoscope 2004;114:1849.
Georgalas, C., Babar-Craig, H., Arora, A., & Narula, A. Health outcome measurements in children with sleep disordered breathing. Clin Oto 2007;32:268-274.
Gerson A, Hwang W, Fiorenza J, Barth K, Kaskel F, Weiss L, Zelikovsky N, Fivush B, Furth S. Anemia and health-related quality of life in adolescents With Chronic Kidney Disease. American Journal of Kidney Diseases 2004;44(6):1017-1023.
Gerson A.C., Furth S.L., Neu A.M., & Fivush B.A. Assessing associations between medication adherence and potentially modifiable psychosocial variables in pediatric kidney transplant recipients and their families. Pediatric Transplantation 2004;(8):543-550.
Gerson, AC, Armstead N, Neu AM, Goldstein S, Furth SL, Fivush BA. Health-related quality of life (HRQOL) of children with End-stage Renal Disease (ESRD) on Dialysis. Presentation at the Annual Meeting of the Pediatric Academic Society, Toronto Canada, 5-7 May 2007.
Gilliam F, Wyllie E, Kashden J, Faught E, Kotagal P, Bebin M, Wise M, Comair Y, Morawetz R, Kuzniecky R. Epilepsy surgery outcome: comprehensive assessment in children. Neurology 1997;48(5):1368-1374.
Ginsberg JP, Cnaan A, Zhao H, Clark BJ, Paridon SM, Chin AJ, Rychik J, Hogarty AN, Barber G, Rutkowski M, Kimball TR, DeLaat C, Steinherz LJ, Silber JH. Using health-related quality of life measures to predict cardiac function in survivors exposed to anthracyclines. J Clin Oncol 2004;22(15):3149-55.
Glattes RC, Burton DC, Lai SM, Frasier E, Asher MA. The reliability and concurrent validity of the Scoliosis Research Society-22r patient questionnaire compared to the Child Health Questionnaire-CF87 patient questionnaire for adolescent spinal deformity. Spine,2007;32(16):1778-84.
Goldstein NA, Stewart MG, Witsell DL, Hannley MT, Weaver EM, Yueh B, Smith TL, Orvidas LJ. Quality of life after tonsillectomy in children with recurrent tonsillitis. Otolaryngol Head Neck Surg,2008;138(1 Suppl): S9-S16.
Gorelick MH, Scribano PV, Steven MW, Schultz TR. Construct validity and responsiveness of the Child Health Questionnaire in children with acute asthma. Annals of Allergy, Asthma & Immunology 2003;90:622-628.
Graue M, Wentzel-Larsen T, Hanestad BR, Batsvik B, Sovik O. Measuring self-reported, health-related, quality of life in adolescents with type 1 diabetes using both generic and disease-specific instruments. Acta Paediatr,2003;92(10):1190-6.
Graue M, Wentzel-Larsen T, Hanestad BR, Sovik O. Evaluation of a programme of group visits and computer-assisted consultations in the treatment of adolescents with Type 1 diabetes. Diabet Med,2005;22(11):1522-9.
Gray PH, O'Callaghan MJ, Poulsen L. Behaviour and quality of life at school age of children who had bronchopulmonary dysplasia. Early Hum Dev, 2008;84(1): 1-8.
Guitiérez-Suárez R, Pistorio A, Cespedes Cruz A, Norambueba X, Flato B, Rumba I, Haracek M, Nieleen S, Susic G, Mihaylova D. Humer C, Melo-Gomez, Andersson-Gare, B, Balogh Z, De Cunto C, Vesely R, Pagava K, Romicka AM, Burgos-Vargas, R, Martini A, Ruperto N. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas. The PRINTO multinational quality of life cohort study. Rheumatology (Oxford), 2007;46(2):314-20.
Gäre Andersson B, Ruperto N, Berg S, Hagelberg S, Jonsson NO, Magnusson B, Martinell J, Erling A, Landgraf JM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Swedish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S146-S150.
Hack M. Consideration of the use of health status, functional outcome, and quality-of-life to monitor neonatal intensive care practice. Pediatrics 1999;103(1 Suppl E):319-28.
Hakkaart-van Roijen L, Zwirs BM, Bouwmans C, Tan SS, Sculpen TW, Vlasveld L, Buitelaar JK. Societal costs and quality of life of children suffering from attention deficient hyperactivity disorder (ADHD). Eur Child Adolesc Psychiatry,2007;16(5):316-26.
Harjacek M, Ruperto N, Ostojic J, Bukovac LT, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Croatian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S40-S44.
Hart CN, Palermo TM, Rosen CL. Health-related quality of life among children presenting to a pediatric sleep disorders clinic. Behav Sleep Med,2005;3(1):4-17.
Harvey A, Robin J, Morris ME, Graham HK, Baker R. A systematic review of measures of activity limitation for children with cerebral palsy. Dev Med Child Neurol 2008;50(3):190-8.
Hashkes P, Uziel Y, Press J, Brik R, Navon-Elkan P, Mukamel M, Libman E, Tauber T, Ruperto N, Barash J, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Hebrew version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S86-S90.
Helseth S, Lund T, Christophersen KA. Health-related quality of life in a Norwegian sample of healthy adolescents: some psychometric properties of CHQ-CF87-N in relation to KINDL-N. J Adolesc Health, 2006;38(4): 416-25.
Hepner KA, Sechrest L. Confirmatory factor analysis of the Child Health Questionnaire-Parent Form 50 in a predominantly minority sample. Quality of Life Research 2002;11(8):763-773.
Hirshfeld AB, Kahle AL, Clark BJ 3rd, Bridges ND. Parent-Reported Health Status After Pediatric Thoracic Organ Transplant. J Heart Lung Transplant 2004;23(9):1111-8.
Hofer M, Ruperto N, Saurenmann, Sauvain MJ, Huppertz HI, Landgraf JM, Prieur AM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Swiss German and Swiss French versions of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S151-S157.
Hosli EJ, Detmar SB, Raat H, Bruil J, Vogels TGC, Verrips EHW. Reliability, validity, and structure of the self report form of the Child Health Questionnaire (CHQ-CF87) in a Dutch adolescent population. Expert review of Pharmacoeconomics & Outcomes Research, 2007:7(4):393-401 (doi:10.1586/14737167.7.4.393)
Hou Y, Liu W, Wong A, Chen C, Lin P, Hong J. Relationships among gross motor functions and health-related quality of life in children with cerebral palsy. Poster presented at the 2007 World Physical Therapy Conference. Poster# 30-09. Vancouver Canada, 4 June 2007.
Houghton F, Gleeson M, and Kelleher K. The use of the Child Health Questionnaire (CHQ-CF87) in a rural Irish context. Irish J of Psychology, 2003;24:1-2,34-45.
Houlihan CM, Conway M, Stallings V, Chumlea W, Worley G, Henderson R, Fung E, Rosenbaum F, Samoson-Fang L, Liptak G, O'Donnell M, Calvert R, Stevenson R. Growth in children with cerebral palsy: a population-based survey. Developmental Medicine and Child Neurology, SP#12,32. Abstract presented at the American Academy for Cerebral Palsy and Developmental Medicine, Washington DC. September 15-18, 1999.
Houlihan CM, O'Donnell M, Conaway M and Stevesnon RD. Bodily pain and health-related quality of life in children with cerebral palsy. Dev Med & Child Neuro 2004:46(5):305-310.
Huemer C, Ruperto N, Huemer M, Sailer-Hoeck M, Kaulfersch W, Schwarz R, Rettenbacher A, Kenzian H, Artacker G, Pilz I, Bernecker M, Huppertz HI, Landgraf JM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Austrian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4) (Suppl. 23):S15-S19
Janssens L, Gorter JW, Ketelaar M, Kramer WL, Holtslag. Health-related quality-of-life measures for long-term follow up in children after major trauma. Qual Life Res 2008:17(5):701-13.
Jedel E, Carlsson J, and Stener-Victorin E. Health-related quality of life in child patients with temporomandibular disorder pain. European J of Pain 2007;11:557-563
Jillisson PB, Graue M,Wentzel-Larsen T, Sovik O. The impact of continuous subcutaneous insulin infusion on health-related quality of life in children and adolescents with type 1 diabetes.
Joos R, Ruperto N, Wouters C, Boven K, Raat, H, Landgraf JM, Veys EM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Belgium-Flemish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ).Clin & Exp Rheum 2001;19(4)(Suppl. 23):S20-S24.
Kanter LJ, Siegel CJ, Snyder CF, Pelletier EM, Buchner DA, Goss TF. Impact of respiratory symptoms on health-related quality of life and medical resource utilization of patients treated by allergy specialists and primary care providers. Annals of Allergy, Asthma & Immunology 2002;89(2):139-147.
Kelly MH, Briliante B, Kushner H, Gehron Robey P, Collins MT. Bone, 2005;37(3): 388-94. Physical function is impaired but quality of life preserved in patients with fibrous dysplasia of bone.
Kennedy CH, Juárez AP, Becker A, Greenslade K, Harvey MT, Sullivan C, Tally B. Children with severe developmental disabilities and behavioral disorders have increased special healthcare needs. Dev Med Child Neurol 2007;49(12):926-30.
Klassen A, Landgraf JM, Lee S, Barer M, Raina P. Health related quality of life in 3 and 4 year old children and their parents: preliminary findings about a new questionnaire. Health and Quality of Life Outcomes 2003;1:81.
Klassen AF, Lee SK, Raina P, Chan HW, Mathew D, Brabyn D. Health status and health-related quality of life in a population-based sample of neonatal intensive care unit graduates. Pediatrics 2004;113:594-600.
Klassen AF, Miller A, Fine S. Health-Related Quality of Life in Children and Adolescents Who Have a Diagnosis of Attention-Deficit/Hyperactivity Disorder. Pediatrics 2004;114(5):541-547.
Klassen AF, Miller A, Fine S. Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder. Child Care Health Dev. 2006 Jul;32(4):397-406.
Konijnenberg AY, Uiterwaal CS, Kimpen JL, van der Hoeven J, Buitelaar JK, de Graeff-Meeder ER. Children with unexplained chronic pain: substantial impairment in everyday life. Arch Dis Child, 2005 90(7): 680-6.
Koomen I, Raat H, Jennekens-Schinkel A, Grobbee DE, Roord JJ, van Furth M. Academic and behavioral limitations in health-related quality of life in school-age survivors of bacterial meningitis. Qual Life Res, 2005;14(6):1563-72
Koomen I. Prognosis of bacterial meningitis in childhood. Unpublished master's thesis, Utrecht University Medical Center. 2003.
Koot HM & Wallander JL. (Eds.). (2001). Quality-of-life in children and adolescent illness: concepts, methods, and findings. East Sussex, UK: Brunner-Routledge.
Koscik RL, Douglas JA, Zaremba K, Rock MJ, Splaingard ML, Laxova A, Farell PM. Quality of life in children with cystic fibrosis. J Pediatr, 2005;147(3 Suppl):S64-8.
Kozlova IA, Pukhovska AA, Riabukhin VIu. The psyhological and psychiatric study of children living in Kaluga provinces, Russia (the aftermath of the Chernobyl accident). Zh Nevrol Psikhiatr Im S S Korsakova 1995:95(1):70-74.
Kurtin P, Landgraf JM, Abetz L. Patient-based health status measures in pediatric dialysis: Expanding the assessment of outcomes. American Journal of Kidney Diseases 1994;24:376-382.
Kvrgic S, Niciforovic O, Legetic B., & Potic M. Influences of sociodemographic characteristics of children on reports of their quality of life as a part of a national study in Yugoslavia. Quality of Life Research 2000;9(30:299 (abstract #1425).
Kvrgic S, Niciforovic-Surkovic O, Ukropina S, & Potic M. Quality of life assessment in school-age children and adolescents in Yugoslavia from the viewpoint of the children and their parents. Medicinski Pregled 2001;54(7-8):323-326.
Kvrgic S, Niciforovic-Surkovic O, Ukropina S. Effect of sociodemographic characteristics on health status and quality of life in schoolchildren and adolescents in Yugoslavia. Medicinski Pregled 2001;54(5-6):229-33.
Lam MW, Klassen AF, Montgomery CJ, LeBlanc JG, Skarsgard ED. Quality-of-life outcomes after surgical correction of pectus excavatum: a comparison of the Ravitch and Nuss procedures. Pediatr Surg, 2008;43(5): 819-25.
Landgraf JM, Abetz L, DeNardo BA, Tucker LB. Clinical validity of the Child Health Questionnaire-Parent Form in children with rheumatoid arthritis. Poster presented at the National Scientific Meeting of the American College of Rheumatology, San Francisco, CA. October 1995.
Landgraf JM, Abetz L, Ware JE. (1999,1996). The CHQ: A User's Manual (2nd printing). Boston, MA: HealthAct. 1st printing. Boston, MA: The Health Institute.
Landgraf JM, Abetz L, Ware JE. Psychometric Results of the CHQ-PF50 Form in a Normative U.S. Sample of Children and Its Clinical Application Across Several Condition Groups. Competitive paper presentation at the Third Annual Symposium of Contributed Papers, Quality of Life Evaluation, Boston, MA. May 1996.
Landgraf JM, Abetz L. (1996). Measuring health outcomes in pediatric populations: Issues in psychometrics and application. In Spilker, B (Ed.) Quality of life and pharmacoeconomics in clinical trials (2nd ed.) (pp 793-802). Philadelphia, PA: Lippincott-Raven Publishers.
Landgraf JM, Abetz L. (1998). Influences of sociodemographic characteristics on parental reports of children's physical and psychosocial well-being: Early experiences with the Child Health Questionnaire. In Drotar D. (Ed.) Measuring Health-Related Quality of Life in Children and Adolescents (pp. 105-126). New Jersey: Lawrence Erlbaum Associates, Inc.
Landgraf JM, Abetz L. Functional status and well-being of children representing three cultural groups: Initial self-reports using the CHQ-CF87. Psychology and Health 1997;12(6):839-854.
Landgraf JM, Abetz L. The Infant/toddler quality of life questionnaire: Conceptual framework, logic, content, and preliminary psychometric results. Final Report to Schering-Plough Laboratories and Health Technology Associates. New England Medical Center, July 1994.
Landgraf JM, Abidari J, Cilento BG, Cooper CS, Schulman SL and Ortenberg J. Coping, commitment, and attitude: quantifying the everyday burden of enuresis on children and their families. Pediatrics, 2004;113:334-344.
Landgraf JM, Arnold LE, McKay M. Treatment satisfaction after conversion from oral transdermal methylphenidate. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
Landgraf JM, Arnold LE, McKay MJ. Treatment satisfaction after conversion from oral transdermal methylphenidate. Poster presentation at the 59th Institute on Psychiatric Services - IPS, New Orleans LA. 11-14 October 2007
Landgraf JM, Erling A, Wilkund I, Abetz L, Ware JE. The Child Health Questionnaire: Issues in translation, language, and culture for Swedish children and their parents. Poster presentation at the 2nd Annual Meeting of the International Society for Quality of Life Research, Montreal, Quebec, Canada. October 1995.
Landgraf JM, Maunsell E, Nixon-Speechley K, Bulllinger M, Campbell S, Abetz L, Ware JE. Canadian-French, German, and United Kingdom versions of the Child Health Questionnaire (CHQ-PF50): Methodology and Preliminary Item Scaling Results. Quality of Life Research 1998;7(5):433-445.
Landgraf JM, Maunsell E, Speechley KN, Abetz L, Gibbons L, Barrera M, Ware JE. Psychometric properties of the Child Health Questionnaire (Parent Form) Among English and French-Speaking Canadian Respondents: Preliminary Results. Paper presented at the 2nd Meeting of the International Society for Quality of Life Research, Montreal, Quebec, Canada. October 1995.
Landgraf JM, Ravens-Sieberer U, Bullinger M. Quality of life research in children: Methods and instruments. Dialogues in Pediatric Urology 1997:20(11):5-7.
Landgraf JM, Rich M, Rappaport L. Measuring quality of life in children with attention-deficit/ hyperactivity disorder and their families: Development and evaluation of a new tool. Arch. Pediatr. Adolesc. Med. 2002;156:384-391.
Landgraf JM, Shingler T. ADHD-Specific Quality of Life with Mixed Amphetamine Salts Extended Release in Adults with ADHD. Poster presentation at the 159th Annual Meeting of the American Psychiatric Association, Toronto Canada. 24 May 2006.
Landgraf JM, Shingler T. ADHD-specific quality of life with mixed amphetamine salts extended release in adults with ADHD. Poster presented at the 19th Annual Meeting of the U.S. Psychiatric and Mental Health Congress. New Orleans, LA. 16 November 2006.
Landgraf JM, Ware JE, Rossi-Roh K. (1993). Measuring the Relative Health and Well-Being of Children with Attention Deficit Hyperactivity Disorder. Results from the Children's Health and Quality of Life Project. Final report to Ciba-Geigy, Inc., Project MCS#447, Boston, MA: The Health Institute, New England Medical Center.
Landgraf JM, Ware JE, Schor E, Davies AR, Rossi-Roh K. Comparison of health status profiles for children with medical conditions: Preliminary psychometric and clinical results from the Children's Health and Quality of Life Project. Paper presented at 10th Annual Meeting of the Association for Health Services Research, Washington, D.C. June 1993.
Landgraf JM, Ware JE, Schor E, Davies AR, Rossi-Roh K. Health profiles in children with psychiatric and other medical conditions. Paper presented at the 9th World Congress of Psychiatry, Rio de Janeiro, Brazil. June 1993.
Landgraf JM, Wilens TE, Kerkering J. Quality of life and parent satisfaction with methylphenidate transdermal system. Poster presentation at the 53rd Annual Meeting of the American Academy of Child and Adolescent Psychiatry, San Diego California. 27 October 2006.
Landgraf JM. Measuring Quality of Life in Pediatric Enuresis: Precision and Sensitivity of a New Short-Form for use in Clinical Care. J Ped Urol,2007;3(2):109-17. http://dx.doi.org/10.1016/j.jpurol.2006.04.004
Landgraf JM. "Health-related quality of life assessment in pediatric clinical trials: a brief introduction". In P. Helms and P Stonier (eds.) Paediatric Clinical Research Manual. 2005, pp.41.4-14.13, Euromed Communications.
Landgraf JM. (1999). The CHQ and its application to psychological testing and outcomes for the behavioral healthcare practitioner. In Maruish M. (Ed.) The Use of Psychological Testing for Treatment, Planning, and Outcome Assessment (pp 665-677). New Jersey: Lawrence-Erlbaum Press.
Landgraf JM. Evaluating quality of life in adults with ADHD following triple-bead mixed amphetamine salts (SPD465) treatment. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
Landgraf JM. Issues in measuring and monitoring the health-related quality of life of children surviving cancer. International Journal of Cancer 1999;12:147-150.
Landgraf JM. Measuring Quality of life in Adults with ADHD. Poster presented at the 158th American Psychiatric Associaton Annual Meeting, Atlanta Georgia. 21-26 May 2005.
Landgraf JM. Measuring Quality of Life in Adults with ADHD: Preliminary Findings on the AIM-A. Poster presented at the American Psychological Association Annual Meeting, Washington DC. 19 August 2005.
Landgraf JM. Measuring Quality of Life in Adults with ADHD: Preliminary Findings with the Adult Attention-Deficit Hyperactivity Disorder (ADHD) Impact Module (AIM-A). Poster presentation at the 18th Annual U.S. Psychiatric & Mental Health Congress, Las Vegas Nevada. 8 November 2005.
Landgraf JM. Triple-Bead mixed amphetamine salts (SPD465) improves quality of life in adults with ADHD. Poster presentation at the American Psychiatric Association Annual Meeting, San Diego CA. 19-24 May 2007.
Landgraf, JM. “Practical considerations in the measurement of health-related quality of life in child/adolescent clinical trials”. In P. Fayers and R.D. Hays (2nd edition eds.) Assessing the Quality of life in Clinical Trials. Oxford Press, 2004, pp. 339-367.
Landgraf, JM. Monitoring quality of life in adults with ADHD: Reliability and validity of a new measure. Journal of Attention Disorders, 2007;11(3):351-362. Prepublished May 9, 2007; DOI: 10.1177/1087054707299400.
Landgraf, JM. “The CHQ and its application to psychological testing and outcomes for the behavioral healthcare practitioner" In M. Maruish (Ed) The Use of Psychological Testing for Treatment, Planning, and Outcome Assessment Volume 2. Lawrence-Erlbaum Press, 2004, pp. 443-460.
Legetic B, Kvrgic S, & Niciforovic-Surkovic O. Quality of life among school children and youth in Yugoslavia- Child/Parent Differences. Quality of Life Research 2000;9(3):298 (abstract #1423).
Legett S, Karahodzic, HK, Klie M, Klepper M, Klutho R, Homan S, Noguchi A. Health Status of Bosnian Children in St. Louis, Missouri. Poster #867 presented at the Pediatric Academic Societies Annual Meeting, Baltimore MD. April 2001.
Levi R.B. & Drotar D. Health-related quality of life in childhood cancer: discrepancy in parent-child reports. International Journal of Cancer Supplement 1999;12:58-64.
Liptak GS, O'Donnell M, Conaway M, Chumlea WC, Wolrey G, Henderson RC, Fung E, Stallings VA, Samson-Fang L, Calvert R, Rosenbaum P, Stevenson RD. The health status of children with moderate to severe cerebral palsy. Developmental Medicine and Child Neurology 2001;43(6):364-370.
Lollar DJ, Simeonsson RJ, Nanda U. Measures of outcomes for children and youth. Archives of Physical Medicine and Rehabilitation,2000;81(Suppl. 2):S46-S51.
Machado CSM, Ruperto N, Silva CHM, Ferriani VPL, Roscoe I, Campos LMA, Oliveira SKF, Kiss MHB, Bica BERG, Sztajnbok F, Len CA, Melo-Gomes JA, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Brazilian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S25-S29.
Marklund B, Ahlstedt S, Nordstrom A. Health-related quality of life in food hypersensitive schoolchildren and their families: parents' perceptions. Health Qual Life Outcomes,2006;4():48.
Martel D, Bussières JF, Théorêt Y, Lebel D, Kish S, Moghrabi A, Laurier C. Use of alternative and complementary therapies in children with cancer. Pediatr Blood Cancer, 2005;44(7):660-8.
Matsuda T, Noguchi M, Umeno Y, Kato N. QOL research in child health. Present state and issues. Nippon Koshu Eisei Zasshi, 2006;53(11): 805-17.
Matza LS, Rentz AM, Secnik K, Swensen AR, Revicki DA, Michelson D, Spencer T, Newcorn JH, Kratochvil CJ. The link between health-related quality of life and clinical symptoms among children with attention-deficit hyperactivity disorder. J Dev Behav Pediatr, 2004;25(3): 166-74.
Matza LS, Rentz AM, Secnik K, Swensen AR, Revicki DA, Michelson D, Spencer T, Newcorn JH, Kratochvil CJ. The link between health-related quality of life and clinical symptoms among children with attention-deficit hyperactivity disorder. J Dev Behav Pediatr, 2004;25(3): 166-74.
Matza LS, Secnik K, Mannix S, Sallee FR. Parent-proxy EQ-5D ratings of children with attention-deficit hyperactivity disorder in the US and the UK. Pharmacoeconomics, 2005;23(8):777-90
McCarthy ML, Silberstein CE, Atkins EA, Harryman SE, Sponseller PD, Hadley-Miller NA. Comparing reliability and validity of pediatric instruments for measuring health and well-being of children with spastic cerebral palsy. Developmental Medicine and Child Neurology 2002;44(7):468-476.
McCrindle BW, Williams RV, Mital S, Clark BJ, Russell JL, Klein G, Eisenmann JC. Physical activity levels in children and adolescents are reduced after the Fontan procedure, independent of exercise capacity, and are associated with lower perceived general health. Arch Dis Child,2007;92(6):509-14
McCrindle BW, Williams RV, Mitchell PD, Hsu DT, Paridon SM, Atz AM, Li JS, Newburger JW for the Pediatric Heart Network. Relationship of Patient Medical Characteristics to Health Status in Children and Adolescents After the Fontan Procedure. Circulation 2006;113(8):1123-9.
McCullough N and Parkes J. Use of the Child Health Questionnaire in children with cerebral palsy: A systematic review and evaluation of the psychometric properties. J Ped Psychol. 2008;32(1):80-90.
McCullough N, Parkes J, White-Koning M, Beckung E, Colver A. Reliability and Validity of the Child Health Questionnaire PF-50 for European Children with Cerebral Palsy. J Pediatr Psychol. 2008 May 22. Epub. PMID: 18499739
McGrath M, Bukstein DA, Buchner DA, Guzman GL, Landgraf JM, Goss T. Assessment of the relationship between disease severity and general and disease specific health-related quality of life in pediatric asthma patients. Ambulatory Child Health 1999;5, 249-261.
Melo-Gomes JA, Ruperto N, Canhao H, Fonseca JE, Quintal A, Salgado M, Santos MJ, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Portuguese version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S126-S130.
Michelson D, Faries D, Wernicke J, Kelsey D, Kendrick K, Sallee FR, Spencer T, & the Atomoxetine ADHD Study Group. Atomoxetine in the treatment of children and adolescents with Attention-Deficit/Hyperactivity Disorder: A randomized, placebo-controlled, dose-response study. Pediatrics 2001;108(5):1-9.
Mihaylova D, Ruperto N, Kibarova V, Teltcharova-Mihaylovska A, Kalaikov D, St. Stefanov, Lisichki K, Bojidarova M, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Bulgarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S30-S34.
Miller V, Palermo TM, & Grewe SD. Quality of life in pediatric epilepsy: demographic and disease-related predictors and comparison with healthy controls. Epilepsy & Behavior 2003;4:36-42.
Miranda, M. Ruperto N, Toso MS, Lira LW, Gonzalez B, Norambuena X, Quezada A, De Inocencio J, Mendez C, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Chilean version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S35-S40.
Mohangoo AD, de Koning HJ, Mangunkusumo RT, Raat H. Health-related quality of life in adolescents with wheezing attacks. J Adolesc Health, 41(5): 464-71.
Moons P, Barrea C, De Wolf D, Gewillig M, Massin M, Mertens L, Oavaert C, Suys B, Sluysmans T. Changes in perceived health of children with congenital heart disease after attending a special sports camp. Pediatric Cardiology,2006;27:67-72. DOI 10.1007/s00246-005-1021-5
Moons P, Barrea C, Suys B, Oavaert C, Boshoff D, Eyskens B, Vandenrijn C, Sluysmans T. Improved perceived health status persists three months after a special sports camp for children with congenital heart disease. Eur J Pediatrics,2006;165:767-772. DOI 10.1007/s00431-006-0171-7.
Morales NM , Silva CHM, Frontarolli, AC, Araújo RRH, Rangel VO, Pinto RMC, Morales RR and Gomes DC. Psychometric properties of the initial Brazilian version of the CHQ-PF50 applied to the caregivers of children and adolescents with cerebral palsy. Quality of Life Research 2007;16(3):434-444. DOI10.1007/s11136-006-9136-6 (2006).
Moretti C, Viola S, Pistorio A, Magni-Manzoni S, Ruperto N, Martini A, Ravelli A. Relative responsiveness of condition specific and generic health status measures in juvenile idiopathic arthritis. Ann Rheum Dis,2005;64(2):257-61.
Moroldo MB, Rupeerto N, Espada G, Russo R, Liberatore D, Cuttica R, Giacomone D, Garay S, De Inocencio J, De Cunto C, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Argentinian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S10-S14.
Murphy KR, Fitzpatrick S, Cruz-Rivera M, Miller CJ, Parasuraman B. Effects of budesonide inhalation suspension compared with cromolyn sodium nebulizer solution on health status and caregiver quality of life in childhood asthma. Pediatrics,2003;112(3 Pt 1): e212-9.
Newcorn JH, Spencer TJ, Biederman J, Milton DR, Michelson D. Atomoxetine treatment in children and adolescents with attention-deficit/hyperactivity disorder and comorbid oppositional defiant disorder. J Am Acad Child Adolesc Psychiatry 2005;44(3):240-8.
Ng JY, Landgraf JM, Chiu CSW, Cheng NL, Cheung YF. Preliminary evidence of the measurement properties of the Chinese version of the Child Health Questionnaire, parent form (PF50) and child form (CHQ-CF87). Quality of Life Research 2005;14:1775-81.
Nicolay U, Haag S, Eichmann F, Herget S, Spruck D and Gardulf A. Measuring treatment satisfaction in patients with primary immunodeficiency diseases receiving lifelong immunoglobulin replacement therapy. Quality of Life Research 2005;12(7):1683-1691.
Nielsen S, Ruperto N, Herlin T, Pedersen FK, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Danish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S50-S54.
Nikishina I, Ruperto N, Kuzmina N, Shelepina T, Illarionova O, Salougina S, Kaleda M, Borodacheva O, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Russian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S131-S135.
Nixon Speechley K, Maunsell E, Desmeules M, Schanzer D, Landgraf JM, Feeny DH, Barrera ME. Mutual concurrent validity of the Child Health Questionnaire and the Health Utilities Index: An exploratory analysis using survivors of childhood cancer. International Journal of Cancer Supplement 1999;12:95-105.
Norrby U, Nordholm L, Andersson Gare, Fasth A. Health-related quality of life in children diagnosed with asthma, diabetes, juvenile chronic arthritis or short stature. Acta Paediatr,2006;95(4):450-6.
Norrby U, Nordholm L, Fasth A. Reliability and validity of the swedish version of child health questionnaire. Scand J Rheumatol, 2003;32(2): 101-7.
Norrby U. Nordholm LA. Reliability and validity of a Swedish version of Child Health Questionnaire (CHQ). Quality of Life Research 2001;10(3):287 (abstract #377).
Nugent J, Ruperto N, Grainger J, Machado C, Sawhney S, Baildam E, Davidson J, Foster H, Hall A, Hollingworth P, Sills J, Venning H, Walsh JE, Landgraf JM, Roland M, Woo P, for the Paediatric Rheumatology International Trials Organization (PRINTO). The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S163-S167.
Nydegger A, Srivastava A, Wake M, Smith AL, Hardikar W. Health-related quality of life in children with hepatitis C acquired in the first year of life. J Gastroenterol Hepatol, 2008; 23(2): 226-30.
Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, Saad-Magalhaes, Murray KJ, Sang-Cheol B, Joos R, Foeldvari I, Duarte-Salazar C, Wulffraat N, Lahdenne P, Dolezalova P, de Inocencio J, Kanakoudi-Tsakalidou F, Hofer M, Nikishina I, Ozdogan H, Hashkes PJ, Landgraf JM, Martini A, Ruperto N. for PRINTO. Proxy-reported health-related quality of life of patients with Juvenile Idiopathic Arthritis: The pediatric rhematology internation trials organization multinational quality of life cohort study. Arthritis & Rheumatism 2007(Arthritis Care & Research);57(1):35-43.
Orban I, Ruperto N, Balogh Z, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Hungarian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S81-S85.
Ostblom E, Egmar AC, Gardulf A, Lilja G, Wickman M. The impact of food hypersensitivity reported in 9-year-old children by their parents on health-related quality of life. Allergy 2008;63(2):211-8.
Osterbrink R, Jansingh-Piepers EM, Raat H, Nuysink M, Landgraf JM, Essink-Bot ML, Moll H. Health related quality of life of pre-school children with wheezing illness. Pediatric Pulmonology 2006;41(10):993-1000.
Osterbrink R, Spong K, de-Goede-Bolder A, Landgraf JM, Raat H, Moll HA. Parental reports of health-related qulaity of life in young children with Neurofibromatosis Type 1: Influence of condition specific determinants. J Pediatr 2007;151:182-6.
Ozdogan H, Ruperto N, Kasapçopur O, Bakkaloglu A, Arisoy N, Ozen S, Ugurlu Ű, Unsal E, Melikoglu M, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Turkish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S158-S162.
Paediatric Rheumatology International Trials Organisation. Quality of life in juvenile rheumatoid arthritis patients compared to healthy children. Clinical and Experimental Rheumatology 2001;19(4):S23.
Pagava K, Ruperto N, Shalamberidze L, Mshvidobadze N, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Georgian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S66-S70.
Palermo T.M., Schwartz L., Drotar D., & McGowan K. Parental Report of Health-Related Quality of Life in Children with Sickle Cell Disease. Journal of Behavioral Medicine 2002;25(3):269-283.
Panepinto JA, O'Mahar KM, Debaun MR, Loberiza FR, Scott JP. Health-related quality of life in children with sickle cell disease:child and parent perception. Br J Haematol, 2005;130(3):437-44.
Panepinto JA., O'Mahar KM., De Baun MR., Rennie KM., & Scott JP. Validity of the Child Health Questionnaire for use in children with sickle cell disease. J Pediatr Hematol Oncol 2004;26(9):574-8.
Pelkonen P, Ruperto N, Honkanen V, Hannula S, Savolainen A, Lahdenne P, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Finnish version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S55-S59.
Pencharz J., Young N.L., Owen J.L., & Wright J.G. Comparison of three outcomes instruments in children. Journal of Pediatric Orthopedics 2001;21(4):425-432.
Perwein AR, Bennett Johnson S, Silverstein JH. Quality of life assessment in youth with Type 1 Diabetes: Use of a brief generic measure. Quality of Life Research 2000;9(3):281 (abstract #1584).
Perwien A, Faries DE, Kratochvil CJ, Summer CR, Kelsey DK, Allen AJ. Improvement in health-related quality of life in children with ADHD: an analysis of placebo controlled studies of atomoxetine. J Dev Behav Pediatr,2004;25(4):264-71.
Perwien AR , Kratochvill CJ, Faries DE, Vaughan BS, Spencer T, Brown RT. Atomoxetine treatment in children and adolescents with attention-deficit hyperactivity disorder: what are the long-term health-related quality of life outcomes? J Child Adolesc Psychopharmacol, 2006; 16(6):713-24.
Pirpiris M & Graham HK. Uptime in children with cerebral palsy. J Ped Ortho 2004;24(5):521-528.
Pouchot J, Ruperto N, Lemelle I, Sommelet D, Grouteau E, David L, Duquesne A, Deslandre Job C, Paut Kone I, Pillet P, Goumy L, Barbier C, Guyot MH, Mazingue, Gandon Laloum S, Fischbach M, Quartier P, Guyot C, Jean S, Le Gall E, Plouvier E, Bost M, de Lumley L, LePlège A, Larbre JP, Guillemin F, Coste J, Landgraf JM, Prieur AM, for the Paediatric Rheumatology International Trials Organization (PRINTO). The French version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S60-S65.
Powers P, Abetz LN, Landgraf J. Adolescent with cystic fibrosis: Mother, father and child reports of health. Paper presented at the 104th Annual Convention of the American Psychological Association, Toronto, Canada. August 1996.
Powers P. Fathers' perceptions of health and functional status in adolescents with cystic fibrosis. Paper presented at the Great Lakes Regional Pediatric Psychology Conference, Toronto, Canada. April 1996.
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Pratsidou-Gertsi P, Vougiouka O, Tsitsami E, Ruperto N, Siamopoulou-Mavridou A, Dracou C, Daskas I, Trachana M, Alaleou V, Kanakoudi-Tsakalidou, for the Paediatric Rheumatology International Trials Organization (PRINTO). The Greek version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin & Exp Rheum 2001;19(4)(Suppl. 23):S76--S80.
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